
Sydney Towle, 26, died of bile duct cancer after documenting treatments and life on TikTok for three years. Her story reflects a rising trend of young cancer influencers.
Sydney Towle died on August 5 at 26 from cholangiocarcinoma, a rare bile duct cancer she documented for three years on TikTok. Her brother Austin Towle and mother Elizabeth Morrow told her 1.1 million followers the next day: "We thank all of you for your support over the years."
Towle was 23 when she went to a doctor for what she thought was a hernia. The diagnosis upended her life. She started posting videos about her surgeries, scans, chemotherapy, and clinical trials. She also posted trips with friends, sunny walks, a song dedication from the band Royel Otis. Some videos drew millions of views.
She was part of a growing wave. Cancer rates in people under 50 have been rising for colon, breast, and other cancers, according to published data. Young patients who are fit, eat clean, and have no family history still get sick. Towle and others use social media to make that point: no one is safe, so get symptoms checked.
Sarah Barness, diagnosed with breast cancer at 27 alongside her sister Sophie, wrote for Business Insider after remission: "It felt odd to be nostalgic for a time I should want to forget, but I missed chemo because I had structure, abundant support, and sympathy, both in-person and online."
Gabby Zappia was diagnosed with stage 4 colon cancer at 37, three months after giving birth. She told her 35,800 Instagram followers that blood in her stool, bloating, and fatigue could look like normal postpartum symptoms. "Please be on the lookout and share with your loved ones," she wrote.
Breeze Hunter was a senior at Texas A&M when she got acute myeloid leukemia at 22. Her "MTV Cribs"-style TikTok tour of her hospital room – she called it her "200 square foot mansion" – got 18 million views. She told Business Insider that connecting with other young cancer patients online helped her cope. "It is very hard – we are so young and we're missing out on a lot of young adult things," she said.
Towle's videos drew a steady stream of comments from nurses, patients, and strangers. One user, @isabellaelena18, wrote: "I'm a nurse! Just had a patient with the same cancer like 2-3 weeks ago. None of the other nurses knew anything about the cancer but me! Because of you! Thank you for educating!!"
Another user, @erindelanty1, wrote: "Syd will never be forgotten. She has taught us so many lessons. Mostly to live each day to its fullest and to be grateful to just BE HERE."
Young cancer patients face costs that compound differently than older patients – student loans, entry-level salaries, plans to start families or buy homes put on hold. Towle's videos showed all of it, not just the hospital visits.
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