
Carla Romagnano, 65, works full time and cares for her 84-year-old mother, who has dementia. She sleeps on the couch, drives hundreds of miles for doctor visits, and says caregiving is harder than any job she has held.
Carla Romagnano is in her 60s. She works full time as a bookkeeper for a grocery chain, a job she has held for 45 years. When she comes home, her second shift starts: caring for her 84-year-old mother, who lives with her in Idaho.
"Caregiving is the hardest job I've ever had," she said.
Her mom broke her femur in a fall in 2022 and was diagnosed with dementia around the same time. Romagnano and her father initially split the caregiving duties. He died of sepsis shortly after they put the family home on the market. The packing and moving fell to her.
"I don't know how I packed that house," she said. "I would get up at 7 a.m. and go to bed at midnight."
She promised her father she would not put her mom in a nursing home unless it was absolutely necessary. "It's not yet," she said.
Romagnano sleeps on the couch every night, just outside her mother's bedroom door. She has done so for almost three years. A monitor in her own bedroom would not get her there fast enough if her mom tried to get up in the night, she said. Her mother uses a walker and is at risk of falls.
"I'm not going to chance it by being across the hall or down the hall and not be able to get to her in time," Romagnano said.
Her mom has a commode in the bedroom. If she needs help, she calls out. Romagnano is right outside the door.
An in-home caregiver comes during the day while Romagnano works. Consistency matters for her mother, she said. When the regular caregiver cannot make it, they skip that day rather than introduce a new face.
Romagnano's job is her only source of income. She said she cannot retire. Insurance through her union is good, and she hopes to make 50 years with the company.
"Come tomorrow, you just don't know what's going to happen, especially with her illness," she said. "It's really day by day."
Doctor visits add up. In one year, Romagnano drove 800 miles for appointments, prescriptions, and related errands. The year before, it was 600.
She sits in the driveway for a few minutes after work to decompress before walking in the door. "My second job starts," she said.
Her mom likes getting out of the house. They go to thrift shops – she had lost weight before moving in and needed clothes that fit. They go to the grocery store. They go out for Chinese food and ice cream weekly. Family and friends sometimes join.
"It's time for her to just enjoy getting out and the food she likes," Romagnano said.
Her mom can no longer cook – the stove is too dangerous – or do laundry. Romagnano gives her small projects, like wrapping gifts or assembling Easter baskets for the children of family and friends.
"She does feel terrible about it," Romagnano said. "My mom is still capable of doing some things, not everything."
She attends a support group for caregivers. "It's a time to talk about changes in whoever we're taking care of and ways to handle it, venting and frustrations, and what we're doing for ourselves," she said. "That's the most important thing: taking care of ourselves in order to take care of somebody else."
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